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The All-Party Parliamentary Group on Cerebral Palsy is a forum for Parliamentarians to better understand the challenges faced by individuals of all ages with cerebral palsy and their families.

About the Group

Group Co-Chairs

Mary Foy MP (Labour, City of Durham)

Mary Foy was elected as the MP for the City of Durham in 2019. She was previously a councillor in Gateshead, where she had particular responsibility for public health. She also worked with the community and voluntary sector in Durham as a development worker at the Durham City District CVS. Cerebral palsy is an issue that is extremely close to Mary’s heart, having cared for her daughter Maria, who had cerebral palsy, for 27 years.

 

 

 

Paul Maynard MP (Conservative, Blackpool North and Cleveleys)

Paul Maynard has been the MP for Blackpool North and Cleveleys since 2010. He is a former Transport and Justice Minister and worked as a political adviser and speechwriter before becoming an MP. Paul has cerebral palsy himself, which he says gives him a unique and enriched perspective as an MP and is a fervent campaigner for equal opportunities for people with disabilities.

 

 

Information on all the group’s officers can be found here.

Call for evidence – adults with cerebral palsy

The APPG on Cerebral Palsy is launching a call for evidence for its next two virtual sessions:

  1. Barriers for adults with Cerebral Palsy accessing and receiving healthcare that prevent them from ageing well and full life participation. (Tuesday 14 September – 2pm)
  2. Barriers to employment facing people with Cerebral Palsy entering, staying in, and progressing in work, and lessons from the impact of Covid-19 (Tuesday 9 November – 2pm)

We are taking written submissions for our report to Parliamentarians with a deadline of 5pm on Tuesday 30 November 2021. Input from any interested stakeholder on these topics will be considered. This evidence will be used to inform the recommendations the APPG makes to Government. We are seeking concise responses focused on policy recommendations, key facts and figures.

Click here to find out more.

APPG on Cerebral Palsy publishes second report to mark World CP Day

Best practice in Education, Health and Care Plans (EHCPs), Teaching, and Learning for Children with Cerebral Palsy

The All-Party Parliamentary Group on Cerebral Palsy has release of their latest report: Best practice in Education, Health and Care Plans (EHCPs), Teaching, and Learning for Children with Cerebral Palsy to mark World CP Day 2021, on 6 October.

The publication examines how best practice can be spread in the vital Education, Health and Care Plans (EHCPs) which spell out a child’s needs, as well as teaching and learning for children with cerebral palsy. This represents the next stage in the APPG’s work of examining the impact of Cerebral Palsy as a lifelong condition.

Cerebral palsy is a complex lifelong neurological condition which can have a severe impact on an individual’s learning, future opportunities, and quality of life. This is why it is vital that children with cerebral palsy receive the very best early intervention, and high-quality ongoing therapeutic, medical, and educational provision from experienced and specialist professionals.

Drawing on the testimony of experts, parents and those with lived experience of Cerebral Palsy, the APPG’s report finds that there are gaps in the existing process and service provision that are letting children with Cerebral Palsy and their families down.

To remedy this, and to end the postcode lottery of access to support, the APPG makes a series of recommendations that will revitalise the current support system and remove the barriers that children and young people with Cerebral Palsy and their families encounter. Specific recommendations include:

  • The Government appointing a national Cerebral Palsy Action Champion to join the dots between policies on addressing cerebral palsy as a lifelong condition across different departments.
  • The creation of Neurodisability Care Index (NCI) to bring together information about the resources and support available for those with cerebral palsy.
  • Every local authority must sign up to a Cerebral Palsy Covenant to ensure a common standard of access to services is maintained across England, ending the postcode lottery.

Click here to view the full report.

Group Sponsor

The founding sponsor of the APPG on Cerebral Palsy is Action Cerebral Palsy. Further meetings in the second half of 2021 were sponsored by Adult CP Hub and Scope. Secretariat support for the APPG is provided by Connect.

 

 

Action Cerebral Palsy  was founded in 2013 as a national consortium of specialist charities working with children with cerebral palsies and their families and aims to represent the best interests of the Cerebral Palsy community to policy makers and are committed to developing models of best practice at national and local levels.

 

 

Adult Cerebral Palsy Hub has been established to create a home for adults with Cerebral Palsy and put their needs at the forefront of the minds of the medical and research community.

 

 

Scope is the disability equality charity in England and Wales. They exist to provide practical information and emotional support when it’s most needed and to campaign relentlessly to create a fairer society.

Contact the group

If you have any questions or would like to find out more about the APPG, please email CerebralPalsyAPPG@connectpa.co.uk

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