The All-Party Parliamentary Group on Cerebral Palsy is a forum for Parliamentarians to better understand the challenges faced by individuals of all ages with cerebral palsy and their families.
About the Group
Mary Foy MP (Labour, City of Durham)
Mary Foy was elected as the MP for the City of Durham in 2019. She was previously a councillor in Gateshead, where she had particular responsibility for public health. She also worked with the community and voluntary sector in Durham as a development worker at the Durham City District CVS. Cerebral palsy is an issue that is extremely close to Mary’s heart, having cared for her daughter Maria, who had cerebral palsy, for 27 years.
Paul Maynard MP (Conservative, Blackpool North and Cleveleys)
Paul Maynard has been the MP for Blackpool North and Cleveleys since 2010. He is a former Transport and Justice Minister and worked as a political adviser and speechwriter before becoming an MP. Paul has cerebral palsy himself, which he says gives him a unique and enriched perspective as an MP and is a fervent campaigner for equal opportunities for people with disabilities.
Information on all the group’s officers can be found here.
Call for evidence – children with cerebral palsy
The APPG on Cerebral Palsy is launching a call for evidence for its third and fourth virtual sessions:
- Education, Health and Care Plans (EHCPs) for children with cerebral palsy (25 May, 2 p.m.).
- Best Practices in Teaching and Learning for children with cerebral palsy (6 July, 2 p.m.).
We are taking written submissions for our report to Parliamentarians with a deadline of Friday 30 July.
Input from any interested stakeholder on these topics will be considered. This evidence will be used to inform the recommendations the APPG makes to Government. We are seeking concise responses focused on policy recommendations, key facts and figures.
Future sessions will examine the impact of cerebral palsy on later life stages.
The APPG on Cerebral Palsy’s first report
Early identification, intervention and pathways of care of infants and young children with cerebral palsy: The case for reform and investment
The All-Party Parliamentary Group on Cerebral Palsy has published a report following its first two meetings and a call for evidence. It focused on the issues of early identification and intervention, pathways of care, and centres of excellence.
The report makes a number of key recommendations for reform and investment that have the potential to make a huge difference to children with cerebral palsy and their families, most significantly:
- All health authorities should be required to implement the NICE Guidelines and Quality Standards on the management of cerebral palsy as a minimum standard.
- The Government must fund and ringfence streamlined pathways of care for children at risk of neurodisability.
- The Personal Child Health Record, or ‘red book’, should be modified to check for signs of abnormal motor development.
You can read the full report here.
Government responds to APPG on Cerebral Palsy’s first report
The Government has responded to parliamentary questions tabled by two of the APPG’s officers concerning recommendations made in our first report. Vice-Chairs, Greg Smith MP and Dr Lisa Cameron MP, raised questions of the Department for Health and Social Care and the Department for Education. You can view the questions, alongside the responses from ministers here.
In response to the APPG’s call to improve data collection on babies and children with cerebral palsy and other neurodisabilities, Care Minister Helen Whatley said:
‘NHS England and NHS Improvement will be meeting in due course to consider the recommendations to improve early detection and treatment pathways for cerebral palsy set out in the report, ‘Early identification, intervention and pathways of care of infants and young children with cerebral palsy: The case for reform and investment’, published by the All-Party Parliamentary Group on Cerebral Palsy in March 2021.’
The APPG will continue to monitor progress in this area and awaits NHSE/I’s response to our report.
The APPG has, so far, been supported by the charity Action Cerebral Palsy, via its secretariat, Connect.
Action Cerebral Palsy was founded in 2013 as a national consortium of specialist charities working with children with cerebral palsies and their families. It became a registered charity in 2016 and now works at a national level towards improving public, professional and political awareness of the issues facing children and young people with cerebral palsies. It aims to represent the best interests of the Cerebral Palsy community to policy makers and are committed to developing models of best practice at national and local levels.
Call for evidence – Children with cerebral palsy
Early identification, intervention and pathways of care of infants and young children with cerebral palsy: The case for reform and investment – APPG on Cerebral Palsy report, March 2021
Contact the group
If you have any questions or would like to find out more about the APPG, please email CerebralPalsyAPPG@connectpa.co.uk
Sign up for updates
If you would like to receive notification of forthcoming Group meetings please enter your details below: