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The All-Party Parliamentary Group on Cerebral Palsy is a forum for Parliamentarians to better understand the challenges faced by individuals of all ages with cerebral palsy and their families.

About the Group

Group Co-Chairs

Mary Foy MP (Labour, City of Durham)

Mary Foy was elected as the MP for the City of Durham in 2019. She was previously a councillor in Gateshead, where she had particular responsibility for public health. She also worked with the community and voluntary sector in Durham as a development worker at the Durham City District CVS. Cerebral palsy is an issue that is extremely close to Mary’s heart, having cared for her daughter Maria, who had cerebral palsy, for 27 years.

 

 

 

Paul Maynard MP (Conservative, Blackpool North and Cleveleys)

Paul Maynard has been the MP for Blackpool North and Cleveleys since 2010. He is a former Transport and Justice Minister and worked as a political adviser and speechwriter before becoming an MP. Paul has cerebral palsy himself, which he says gives him a unique and enriched perspective as an MP and is a fervent campaigner for equal opportunities for people with disabilities.

 

 

Information on all the group’s officers can be found here.

APPG on Cerebral Palsy - Transition to Adulthood – Call for Evidence and sessions

The APPG on Cerebral Palsy is launching a call for evidence for its next two sessions:

  1. The transition to adulthood in health and education focussing on the lived experience of young people with Cerebral Palsy (26 April, 11.30am)
  2. Examining the systems involved in the transition to adulthood in health and education for young people with Cerebral Palsy (21 June, 10.00am)

We are taking written submissions for our report to Parliamentarians with a deadline of 15 July.

We are seeking evidence from people with lived and professional experience of the process of supporting the transition of young people with cerebral palsy (14-25) into adulthood, with a focus on health, education and care needs. This evidence will be used to inform the recommendations the APPG makes to Government. Input from any interested stakeholder on these topics will be considered.

Click here to read our full call for evidence.

 

APPG on Cerebral Palsy publishes third report on removing barriers for adults with Cerebral Palsy

MPs and Peers urge Government, healthcare professionals, and employers to remove barriers faced by adults living with Cerebral Palsy in healthcare and work

A cross-party group of Parliamentarians has today (Monday 14 March) outlined how adults living with Cerebral Palsy must be supported to enable them to live their lives to the fullest.

The All-Party Parliamentary Group on Cerebral Palsy’s third report examines the barriers for adults with Cerebral Palsy on achieving full life participation in healthcare and the workplace. This forms part of the Group’s on-going work to explore Cerebral Palsy as a lifelong condition and has been published as part of Cerebral Palsy Awareness Month.

Among the recommendations, Parliamentarians call on NHS England, social care, education, and employment specialists to agree a new national specification for adult Cerebral Palsy to commission dedicated specialist services across the new 42 Integrated Care Systems (ICSs) in England. Devolved governments should put in similar measures in their respective health systems.

Other proposals contained in report include:

  • Guaranteeing adults living with Cerebral Palsy annual medical reviews to better assess their evolving health and care needs.
  • Ringfencing funding for the ICSs to develop specialist services.
  • Enhancing employment rights for adults with Cerebral Palsy to better reflect the varied, fluctuating, and complex nature of their conditions.
  • Creating a new online information hub for employers to better understand the needs of member of the adult Cerebral Palsy community in their workforces.

Parliamentarians composed the report based on dozens of submissions from clinicians, academic experts, leading charities, campaigning organisations and, crucially, members of the adult Cerebral Palsy community from all parts of the UK providing testimonials as to their lived experience. In addition to recommendations for policymakers, the report highlights many of these moving stories to support its proposals.

Commenting on the launch of the report, the APPG on Cerebral Palsy’s Co-Chairs, Mary Kelly Foy MP and Paul Maynard MP said:

‘Cerebral Palsy is a lifelong condition, and we hope that this report emphasises the crucial need to refocus attention on barriers to achieving full life participation for those living with it.

 ‘This third report of the APPG on Cerebral Palsy focuses on access to healthcare services and progressing work for people living with Cerebral Palsy. The COVID-19 pandemic has highlighted both opportunities and barriers in both areas, but we also must not let the pandemic distract from long-standing problems that need to be addressed.

 ‘We are immensely grateful to all those who attended the fifth and sixth meetings of the APPG to examine these topics in detail, and to those who submitted the evidence that provides the backbone to this report.

 ‘As Members of Parliament with lived experience of Cerebral Palsy, we hope Government will engage with the APPG’s recommendations and work with us to provide quality provision and specialist care throughout life for those living with cerebral palsy to ensure they have the best life chances possible.’

Click here to view the full report.

For an accessible version, please click here.

Sponsorship of the APPG

The founding sponsor of the APPG on Cerebral Palsy is Action Cerebral Palsy. Further meetings in the second half of 2021 were sponsored by Adult CP Hub and Scope. The APPG’s sponsors in 2022 were Action Cerebral Palsy and Caudwell Children. Secretariat support for the APPG is provided by Connect.

 

 

Action Cerebral Palsy  was founded in 2013 as a national consortium of specialist charities working with children with cerebral palsies and their families and aims to represent the best interests of the Cerebral Palsy community to policy makers and are committed to developing models of best practice at national and local levels.

 

Caudwell Children was established in 2000 by former CEO of the Caudwell Group and philanthropist, John Caudwell. To date the charity has supported 65,000 disabled children and families, providing services worth over £85million, including direct donations to children and families most in need. Cerebral Palsy is the second most common disability Caudwell Children works with.

 

 

Adult Cerebral Palsy Hub has been established to create a home for adults with Cerebral Palsy and put their needs at the forefront of the minds of the medical and research community.

 

 

Scope is the disability equality charity in England and Wales. They exist to provide practical information and emotional support when it’s most needed and to campaign relentlessly to create a fairer society.

Group materials

Reports:

Barriers for adults with Cerebral Palsy on achieving full life participation: access to healthcare services and progressing at work – APPG on Cerebral Palsy report, March 2022

Accessible version: Barriers for adults with Cerebral Palsy on achieving full life participation: access to healthcare services and progressing at work – APPG on Cerebral Palsy report, March 2022

Best practice in Education, Health and Care Plans (EHCPs), Teaching, and Learning for Children with Cerebral Palsy – APPG on Cerebral Palsy report, October 2021

Early identification, intervention and pathways of care of infants and young children with cerebral palsy: The case for reform and investment – APPG on Cerebral Palsy report, March 2021

Meetings:

Watch our previous meetings here

Minutes: 

26 April – The Lived Experiences of Transitioning Into Adulthood With Cerebral Palsy – APPG on CP – 26 April – Minute

09 November – Barriers to employment facing people with cerebral palsy entering, staying in, and progressing in work, and lessons from the impact of COVID-19 – APPG CP – 09 November – Minutes

14 September – Barriers For Adults With Cerebral Palsy Accessing And Receiving Healthcare That Prevent Them From Ageing Well And Full Life Participation – APPG CP – 14 September – Minutes

06 July – Best Practices in Teaching and Learning – Minutes

25 May – Education, Health and Care Plans and Children with Cerebral Palsy – Minutes

 

Contact the group

If you have any questions or would like to find out more about the APPG, please email CerebralPalsyAPPG@connectpa.co.uk

This is not an official website of the House of Commons or the House of Lords. It has not been approved by either House or its committees. All-Party Parliamentary Groups are informal groups of Members of both Houses with a common interest in particular issues. The views expressed in these webpages are those of the group

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